Mum faces £3m bill for son's rare childhood dementia treatment

Five-year-old Tate McDaid was diagnosed at age four with Sanfilippo Syndrome, a rare neurodegenerative condition often described as childhood dementia or childhood Alzheimer's. While a gene therapy to treat the condition was approved in the US in September, its price has been set at nearly £3 million, leaving families outside the US facing massive financial hurdles to access it. Tate's mother, Tammy, has raised over £160,000 so far, which covers only a small fraction of the total cost. With Tate showing signs of cognitive decline and turning six, his family is in a race against time as the condition can progress more rapidly after age five and the treatment's effectiveness decreases as he gets older.